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2025 Session

Budget Amendments - HB1600 (Member Request)

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Chief Patron: Willett
Medicaid Coverage of Genetic Testing for Critically Ill Infants

Item 288 #8h

Item 288 #8h

First Year - FY2025 Second Year - FY2026
Health and Human Resources
Department of Medical Assistance Services FY2025 $0 FY2026 $4,900,000 GF
FY2025 $0 FY2026 $5,100,000 NGF

Language
Page 359, line 42, strike "$26,268,281,874" and insert "$26,278,281,874".

Page 393, after line 55, insert:

"OOOO. The Department of Medical Assistance Services shall amend the Medicaid State Plan for Medical Assistance and regulations to authorize coverage of Rapid Whole Genome Sequencing (rWGS) for infants one year of age or younger. The department shall promulgate regulations to become effective 280 days or less from the enactment date of this Act to implement this change."



Explanation

(This amendment provides $4.9 million from the general fund and $5.1 million from nongeneral funds the second year to provide Medicaid coverage of genetic testing of critically ill infants with rare diseases. More than 30 million Americans are living with one of more than 10,000 known rare diseases, and 1 in 2 patients diagnosed is a child. Rare diseases, defined as a disease or condition that affects less than 200,000 people in the United States, 4 are very difficult to diagnose. Improving coverage of and access to comprehensive genetic testing tools like rapid Whole Genome Sequencing and enhancing newborn screening programs can help people living with rare diseases get diagnosed more quickly and effectively. Rapid diagnosis can reduce the number of invasive test, procedures and hospital stays, and reduce the care burden on families and caregivers. Currently 14 states provide Medicaid coverage for Rapid Whole Genome Sequencing for infants, with Michigan's Medicaid coverage estimated at providing net savings of $4,155 per patient.)