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2026 Session

Budget Amendments - SB30 (Member Request)

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Chief Patron: Boysko
Newborn Screening Requirements for Gaucher Disease (SB 374)

Item 280 #5s

Item 280 #5s

First Year - FY2027 Second Year - FY2028
Health and Human Resources
Department of Health FY2027 $50,000 FY2028 $50,000 GF

Language
Page 319, line 28, strike "$180,469,119" and insert "$180,519,119".
Page 319, line 28, strike "$180,469,119" and insert "$180,519,119".


Explanation

(This amendment provides $50,000 GF each year as a placeholder for Senate Bill 374, which requires the Department of Health to conduct an evaluation to determine whether Gaucher disease should be included in the Commonwealth's newborn screening panel. Gaucher disease is a serious illness with variations that can be fatal while others allow for a full life with treatment.)