2018 Session

Budget Amendments - HB30 (Member Request)

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Chief Patron: Pillion
HB 1174 Newborn Screening for Lysosomal Storage Disorders

Item 291 #1h

Item 291 #1h

First Year - FY2019 Second Year - FY2020
Health and Human Resources
Department of Health FY2019 $1,800,000 FY2020 $1,200,000 NGF

Page 245, line 48, strike "$163,329,548" and insert "$165,129,548".
Page 245, line 48, strike "$163,329,548" and insert "$164,529,548".


(This amendment provides $1.8 million the first and $1.2 million the second year from the nongeneral funds for the fiscal impact of House Bill 1174 which clarifies that newborn screening tests performed on infants shall include screening for Pompe disease, mucopolysaccharidosis type 1 (MPS-1), and other lysosomal storage disorders for which a screening test approved by the U.S. Food and Drug Administration exists. The source of the nongeneral funds would be an increase to the fee charged to medical providers for the screenings and covers additional lab equipment, and personnel costs to perform the necessary tests, develop education materials and train health care providers.)