2021 Session

Budget Amendments - HB1800 (Member Request)

View Budget Item
View Budget Item amendments

Chief Patron: Miyares
Add Krabbe Disease to Required Newborn Screening

Item 301 #4h

Item 301 #4h

First Year - FY2021 Second Year - FY2022
Health and Human Resources
Department of Health FY2021 $0 FY2022 $2,560,000 GF

Page 332, line 13, strike "$163,353,397" and insert "$165,913,397".


(This amendment provides $2.6 million from the general fund the second year to include Krabbe disease in newborn screening. Funding would cover the start up costs of the testing by the Department of General Services Division of Consolidated Laboratory Services (DCLS) and a nurse educator at the Virginia Department of Health to work with clinicians and parents on the coordination of screening and education services. Funding for DCLS lab testing and the Department of Health’s coordination and education services are recovered from a fee charged to medical providers for each screening test conducted by DCLS. Chapter 416, 2020 Acts of Assembly required the Department of Health to review this disease and provide recommendations to the Board of Health on whether to include it in the core panel or heritable disorders and genetic diseases for which newborn screening is conducted. Data provided to the Krabbe Disease Workgroup addressed concerns with the screening tests for Krabbe disease and the cost to add this disease to newborn screening, which is much less than the fiscal impact statement provided during the 2020 Session on the proposed legislation.)